Ok... so today I made a bunch of phone calls to people in our province that deal with learning disabilities and autism stuff. I am trying to find out how to get some help for my son and some suggestions for ways his teachers can help him (the school asked me for suggestions).
SO I call the learning disabilities association. They didn't really have any suggestions since we have no official diagnosis.
SO next I call the Autism Services people. They were FABULOUSLY helpful until they realized that we don't live in their health region. The woman said "oh, I'm so sorry... what we can do is limited since you aren't in our health region but we could maybe give you some ideas over the phone". So I ask who to call in MY health region. She says "oh... ya... we are the only centre in Saskatchewan. There is no one in your region. I'm sooooo sorry... I know it's ridiculous but our hands are tied".
SO I call our local health region. I say "Hi. I was just talking to the Autism Services people and they told me they can't help me because I am not in their region. SO I am calling you to find out who to call in OUR region".
The secretary stammered around a few times and then said "oh... um... well... maybe so-and-so can help you but she is out of town for a few days but how about I put you through to her voice mail".
THANKS FOR NOTHING people.
I am feeling distraught about Aiden because we got his report card. Basically he did fine academically and abysmally poorly in the effort/attention/appropriate behaviour/social skills end of things.
I think maybe the school feels like Aiden isn't really making any effort.
But I think he is putting a phenomenal amount of energy and effort into being "good" at school.
Our good friend and occupational therapist once told me to imagine tensing every single muscle in my body and then staying that way for 6 hours straight and trying to function normally at the same time. THAT is how it feels to be my son. It takes incredible effort for him just to sit in his chair and try to do what he is told.
I just want to give him credit for doing the best he can. Because I really think he IS doing the best he can the vast majority of the time. He doesn't act the way he does just to be a jerk. He acts that way because he doesn't know how to act any other way, he simply doesn't function the same way most of us do.
My poor kid.
Anyway, I am going to keep phoning people and pestering people until we can get some help. Eventually someone has to let us in.
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